Teens with rett syndrome

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When my girl was 16, she had a day off school that I’d unnoticed about. She’s nonverbal and cannot walk without assistance. Why couldn’t I leave a 16-year-old at home, you wonder. My girl copes with Rett syndrome, a annihilating neurodevelopmental disorder. I put on her bib and cleared away anything on the table so she wouldn’t unexpectedly push it off. Our meals came watery with yummy but steamy syrup. Even sitting in a typical seat can be dicey, as her balance is poor.
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Feeding My Teenage Daughter With Rett Syndrome | The Mighty

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Rett Syndrome: 'Hannah is painfully aware of her limitations' | The Independent

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The most clean day of my animation were the three life afterwards Hannah was born. My husband Vincent and I were in Sweden, wherever they do things a bit differently. There was a communal room in the maternity ward, which had the primo hot cocoa ever.
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