Teens with rett syndrome



  Published by: Rosybuena  Category: Ebony

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When my daughter was 16, she had a day off school that I’d disregarded about. She’s nonverbal and cannot walk without assistance. Why couldn’t I leave of absence a 16-year-old at home, you wonder. My girl copes with Rett syndrome, a devastating neurodevelopmental disorder. I put on her bib and exculpated gone thing on the piece of furniture so she wouldn’t accidentally thrust it off. Our meals came dripping with delicious but muggy syrup. Even motion in a regular chair can be dicey, as her scale is poor.
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Feeding My Teenage Daughter With Rett Syndrome | The Mighty


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Rett Syndrome: 'Hannah is painfully aware of her limitations' | The Independent


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The to the highest degree flawless days of my life were the three days aft Hannah was born. My husband Vincent and I were in Sweden, where they do things a bit differently. There was a communal kitchen in the maternity ward, which had the high-grade hot food ever.
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